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DISORDER RESOURCES
  • PHENYLKETONURIA - INFANTS
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  • RARE DISORDERS OF PROTEIN METABOLISM
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  • GLYCOGEN STORAGE DISEASE
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  2. Glycogen Storage Disease

RESOURCES FOR GLYCOGEN STORAGE DISEASE (GSD)

Here you can access information on many aspects of the dietary management of hepatic GSD, in particular the use of starch.

These materials have been developed in conjunction with Key Opinion Leaders (KOLs) and healthcare professionals.

Person with gloves on examining the head of a young man
Event Recording

Use of nutrition-focused physical exam in IMD with demonstration

21/11/2025
Testing for patient details
Evidence Summary

The Glyde Clinical Trial Summary

23/09/2025
middle-eastern-family-on-family
Webinars

The practical management of Type I Glycogen Storage Disease (GSD) | Webinar Recording

20/03/2025
family in field
Webinars

The practical management of the ketotic types of Glycogen Storage Disease (GSD) | Webinar Recording

22/01/2025
Doctor on a laptop
Event Recording

The Glyde trial - the medical aspects

15/07/2024
Stomach with feeding tube
Events

Case studies on the use of Glycosade given via a feeding tube | Event Recording

15/05/2024
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Events

Case studies on the use of Glycosade in young children | Event Recording

15/05/2024
Signpost
Practical Resources

Glycosade | Practical Guide

25/04/2024
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Webinars

Feeding Challenges in IEM: What to Know, What to Do, When to Refer | Webinar Recording

20/10/2023
Red and white blood cells
Webinars

Efficacy and safety of empagliflozin in GSD type Ib: data from an international questionnaire survey | Webinar Recording

10/05/2022
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Events

Practical issues in the dietary management of hepatic GSDs | Event Recording

15/11/2019
Three hands grasping each other's wrist
Webinars

Ketotic GSDs; Faroe Islands and German Perspectives | Webinar Recording

09/06/2021

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