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DISORDER RESOURCES
  • We have a wealth of resources for the following areas:
  • Phenylketonuria
  • Rare Disorders of Protein Metabolism
  • Lipid Disorders
  • Glycogen Storage Disease
  • Epilepsy & Neurometabolic Disorders - Ketogenic Diet
  • Epilepsy & Neurometabolic Disorders - K.Vita
  • Paediatric Kidney Disease
  • Nutrition Support
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RESOURCES FOR GLYCOGEN STORAGE DISEASE (GSD)

Here you can access information on many aspects of the dietary management of hepatic GSD, in particular the use of starch.

These materials have been developed in conjunction with Key Opinion Leaders (KOLs) and healthcare professionals.

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ALL RESOURCES

Events and Webinars

Practical issues in the dietary management of hepatic GSDs | Event Recording

Events and Webinars

Ketotic GSDs; Faroe Islands and German Perspectives| Webinar Recording

Events and Webinars

Ketotic glycogen storage diseases (GSD); current knowledge and evidence review | Webinar Recording

Practical Resources

Scientific Publication Compendium 2019 | Evidence Summary

Events and Webinars

Medical & Dietetic Management of GSD | Event Recording

Events and Webinars

GSD, Pregnancy and Liver Transplant | Event Recording

Practical Resources

Safety and Efficacy of Glycosade® in GSD | Evidence Summary

WE HAVE A WEALTH OF RESOURCES FOR

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PKU

Rare disorders

Rare disorders of protein metabolism

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Lipid Disorders

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Glycogen Storage Disease

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Ketogenic Diet

K.Vita

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Paediatric Kidney Disease

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Nutrition Support

  • DISORDER AREAS
  • Phenylketonuria
  • Rare Disorders of Protein Metabolism
  • Lipid Disorders
  • Glycogen Storage Disease
  • Epilepsy & Neurometabolic Disorders - Ketogenic Diet
  • Epilepsy & Neurometabolic Disorders - K.Vita
  • Paediatric Kidney Disease
  • Nutrition Support
  • TOOLS
  • PKU Trio Calculator
  • MCT Calculator
  • CPD Reflection Tool
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