RESOURCES FOR GLYCOGEN STORAGE DISEASE (GSD)

Here you can access information on many aspects of the dietary management of hepatic GSD, in particular the use of starch.

These materials have been developed in conjunction with Key Opinion Leaders (KOLs) and healthcare professionals.

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Webinars

The practical management of Type I Glycogen Storage Disease (GSD) | Webinar Recording

20/03/2025
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Webinars

The practical management of the ketotic types of Glycogen Storage Disease (GSD) | Webinar Recording

22/01/2025
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Events

The Glyde trial - the medical aspects | Event Recording

15/05/2024
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Events

Case studies on the use of Glycosade given via a feeding tube | Event Recording

15/05/2024
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Events

Case studies on the use of Glycosade in young children | Event Recording

15/05/2024
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Practical Resources

The Glyde Clinical Trial Summary for Healthcare Professionals | Practical Resources

12/07/2024
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Practical Resources

Glycosade | Practical Guide

25/04/2024
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Webinars

Feeding Challenges in IEM: What to Know, What to Do, When to Refer | Webinar Recording

20/10/2023
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Webinars

Efficacy and safety of empagliflozin in GSD type Ib: data from an international questionnaire survey | Webinar Recording

10/05/2022
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Events

Practical issues in the dietary management of hepatic GSDs | Event Recording

15/11/2019
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Webinars

Ketotic GSDs; Faroe Islands and German Perspectives | Webinar Recording

09/06/2021
Faroe Islands
Webinars

Ketotic glycogen storage diseases (GSD); current knowledge and evidence review | Webinar Recording

31/03/2021

WE HAVE A WEALTH OF RESOURCES FOR

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PKU - Infants
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PKU - Children
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PKU - Adolescents and Adults
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Maternal PKU
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PKU & GMP
Rare disorders
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Rare Disorders of Protein Metabolism
Lipid disorder
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Lipid Disorders
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Glycogen Storage Disease
Ketogenic diet
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Drug Resistant Epilepsy - Ketogenic Diet
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Drug Resistant Epilepsy - K.Vita
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Kidney Disease - Paediatric
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Kidney Disease – Adults
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Nutrition Support