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RESOURCES FOR GLYCOGEN STORAGE DISEASE (GSD)

Here you can access information on many aspects of the dietary management of hepatic GSD, in particular the use of starch.

These materials have been developed in conjunction with Key Opinion Leaders (KOLs) and healthcare professionals.

Webinars

Efficacy and safety of empagliflozin in GSD type Ib: data from an international questionnaire survey | Webinar Recording

Events

Practical issues in the dietary management of hepatic GSDs | Event Recording

Webinars

Ketotic GSDs; Faroe Islands and German Perspectives| Webinar Recording

Webinars

Ketotic glycogen storage diseases (GSD); current knowledge and evidence review | Webinar Recording

Practical Resources

Scientific Publication Compendium 2019 | Evidence Summary

Events

Medical & Dietetic Management of GSD | Event Recording

Events

GSD, Pregnancy and Liver Transplant | Event Recording

Practical Resources

Safety and Efficacy of Glycosade® in GSD | Evidence Summary

WE HAVE A WEALTH OF RESOURCES FOR

PKU - Infants

PKU - Children

PKU - Adolescents and Adults

Maternal PKU

PKU & GMP

Rare disorders

Rare disorders of protein metabolism

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Lipid Disorders

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Glycogen Storage Disease

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Ketogenic Diet

K.Vita

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Paediatric Kidney Disease

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Nutrition Support

  • DISORDER AREAS
  • Phenylketonuria - Infants
  • Phenylketonuria - Children
  • Phenylketonuria - Adolescents and adults
  • Phenylketonuria - Maternal
  • Phenylketonuria - GMP
  • Rare Disorders of Protein Metabolism
  • Lipid Disorders
  • Glycogen Storage Disease
  • Epilepsy & Neurometabolic Disorders - Ketogenic Diet
  • Epilepsy & Neurometabolic Disorders - K.Vita
  • Paediatric Kidney Disease
  • Nutrition Support
  • TOOLS
  • CPD Reflection Tool
  • K.Vita introduction calculator
  • MCT Calculator
  • PKU Trio Calculator
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