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RESOURCES FOR ADOLESCENTS AND ADULTS WITH PHENYLKETONURIA

Looking for resources to help you with the dietary management of adolescents and adults with PKU? Look no further. Here you will be able to find events recordings, practical guides, webinars and tools to assist you with this age group. These resources have been developed in conjunction with Healthcare Professionals.

Webinars

Transition into Adult Medicine Facts and Accomplishments | Webinar Recording

Webinars

COVID-19 - changes, challenges and the future | Webinar Recording

Webinars

Supporting a new mother following a positive Phenylketonuria (PKU) newborn screening result | Webinar Recording

Practical Resources

Scientific Publication Compendium 2019 | Evidence Summary

Events

Addenbrooke’s Experience – Returning to Diet | Event Recording

Events

Influence of Parenting on Adherence to Diet in PKU | Event Recording

Events

Experience of Delivering Adult PKU Patient Group Sessions | Event Recording

Events

Young People's Sexual Health in Britain & Relationship & Sex Education | Event Recording

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WE HAVE A WEALTH OF RESOURCES FOR

  • DISORDER AREAS
  • Phenylketonuria - Infants
  • Phenylketonuria - Children
  • Phenylketonuria - Adolescents and adults
  • Phenylketonuria - Maternal
  • Phenylketonuria - GMP
  • Rare Disorders of Protein Metabolism
  • Lipid Disorders
  • Glycogen Storage Disease
  • Epilepsy & Neurometabolic Disorders - Ketogenic Diet
  • Epilepsy & Neurometabolic Disorders - K.Vita
  • Paediatric Kidney Disease
  • Nutrition Support
  • TOOLS
  • CPD Reflection Tool
  • K.Vita introduction calculator
  • MCT Calculator
  • PKU Trio Calculator
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